Booklets to simplify the diagnosis of PIDs available to key specialists to mark Rare Disease Week
Concise diagnosis guides to help paediatricians, gastroenterologists, respiratory and ENT specialists spot the warning signs of primary immunodeficiency (PID) have been published by the Is It PID? Campaign to mark Rare Disease Day (28 February).
...moreIndependent survey reveals diagnosis delay causing suffering to patients
The first-ever independent survey of adults and children who have Primary Immunodeficiencies has revealed widespread suffering of patients whose diagnosis has been delayed over many years.
...moreIs it PID?
Primary Immunodeficiency – early and appropriate diagnosis campaign
...moreLate Diagnosis Remains a Significant Problem
Late diagnosis remains a serious problem in the diagnosis of Primary Immunodeficiencies (PIDs), the IS IT PID? Campaign Case Review has found.
...moreMassive response to campaign's patient survey
The details of diagnosis delay and its impact on the health and well-being of PID patients are revealed in a survey completed by more than 400 PIA members.
...morePID patient take to the Trafalgar Square 4th Plinth
Diane Hammond mounted the Trafalgar Square’s 4th Plinth at 11pm on 30 July to raise awareness of Primary Immune Deficiency (PID).
...moreResource CD-ROM marks successful culmination of Campaign
A Resource Centre CD-ROM, containing all outputs released as part of the Is it PID? Campaign since its launch in May 2008, has been produced for relevant healthcare professionals.
...moreSimple Diagnosis Guide: where to refer
A revised and updated list of UKPIN member Immunologists has been published and is available to download below.
...moreWebsite launched for ‘Is it PID?’ Campaign
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