The diagnostic delays associated with Primary immunodeficiencies (PID) inflict significant human costs to patients and economic costs to the NHS.

Adults and children affected by PID tell their stories in the case studies below.

If you would like to share your story with the Campaign, or if you have any comments on the stories here please email us

Terry Rawding's diagnosis of CVID came too late to prevent permanent damage to his lungs caused by recurrent bouts of pneumonia. As a result, at 50, he has taken early retirement from a high profile job.
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Primary school teacher Margaret Bennett has spent her career in the germ-rich classroom. But despite recurrent ENT infections and a tonsillectomy at 40, her primary immunodeficiency was not diagnosed until she was 51.
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Noah Rodgers has started nursery following diagnosis and treatment for chronic granulomatous disease (CGD). Noah spent the first three years of his life in and out of hospital with recurrent infections before the underlying cause was finally identified.
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Both Diane Hammond and her daughter, Rachel 15, have PID and suffered years of ill health and recurrent infections before they were diagnosed and given life-transforming treatment.
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Terry Rawding, diagnosed in 2006 after suffering since childhood from recurrent infections (see case study):

In 1998 I spent my 40th in hospital with a streptococcal saliva gland infection! I also saw my GP with complaints of regular digestive and bowel problems, along with a few lengthy chest infections each year.